Wednesday, October 3, 2012

SADS, A Real Thing

MRW 6.20.88 - 10.3.08
Four years ago today, the world lost an incredible young man. And for a writer, I'm truly at a loss for words today. I wondered what I would talk about or share. Last year, I spoke of how grateful I am for the friendships that became stronger and learning who my true friends were after we lost him. And this year, I think I'm going to share about Sudden Arrhythmia Death Syndrom (SADS), which was his cause of death.

When I wrote and had my story published in Chicken Soup for the Soul: Campus Chronicles, I didn't share how he died. I didn't think it was pertinent to the point I was making. But now that I've been more active in the SADS Foundation (mostly donating money, signing petitions when I can and sharing information with others), I realize that it is important to help with anyone who may have the symptoms that lead to SADS. You can read all about the conditions associated with the syndrom here.

I'm not writing this to ask you to donate money, although that always helps with the research, I just want to share a cause that hits close to my heart (no pun intended).

Some people don't like to acknowledge the anniversaries of people they've lost, but I think that it's more than okay. I was lucky to have known, dated, and loved Matty, so today I am reminded of all the good that has come from that loss.

I don't know why, but the Rascall Flatts song "Here" has always reminded me of Matt and how my very broken heart helped me learn a lot more than a 20-year-old should, live through a tough time and get to where I am today.

"And I wouldn't change a thing
I'd walk right back through the rain
Back to every broken heart
On the day that it was breakin'
And I'd relive all the years
And be thankful for the tears
I've cried with every stumbled step 
That led to you and got me here..."
-Rascall Flatts



Leigh said...

So sorry for your loss Amanda! Sending you a big hug today

Vicki said...

:( so sorry for your lost! That Rascall Flatt song is beautiful!

Rach @ This Italian Family said...

I'm so sorry for your loss. I know this must be such a hard day for you every year.

Mademoiselle Michael said...

First, I think it was a brave decision to write about this, so thanks for being will to share this with all of us. I think our words have such power in them, and it's a good thing to write about people, and what's happened, so that we remember and so that we share collectively in our experiences. And, while I certainly cannot even fathom what you went through, I can at least learn about SADS because you took the opportunity to share your words, and your experiences. So, thank you. Love and hugs <3

Bhawana said...

Hi there! I just read your story in the Chicken Soup and I truly believe that it was really inspirational. I am truly sorry for your lost, but remember, there's a reason behind everything. I have to admit that you are amazingly brave. You made me realize that in life, you need to keep moving forward, and that you should not let anything get in your way. Thank You very much for opening up and sharing your story with us. You have no idea how much you've helped millions of people go through the difficulties of life. :)

Natalie said...

What a perfect song---sending you hugs today!

Caitlin C. said...

I am so sorry!! Sending prayers your way. You are so brave for writing about this and sharing the details. You never know who's life you could be saving by sharing this!!

Neon Blonde Runner said...

Thinking of you!!

RebeccaStar said...

Wow, I just read your story from teh Chicke Sup Chronicals and I was so moved I looked you up through Google and here you are. So brave Amanda. I love that you are focusing your attention on the positive, as much as you can. Love and blessings to you today and all days. Love Rebecca, in NZ.

Janna Renee said...

My heart goes out to you! I have actually never heard of SADS, so you are already inspiring awareness!

Krista said...

Hugs to you Amanda. Loss like that will probably never heal over completely but it is so remarkable of you to let yourself feel it every year and choose to focus on the positives. You are an amazing woman!

Tesha Vann said...

He sounds like a great guy. I believe in these kinds of anniversary tributes too.